Melbourne School of Population and Global Health - Theses

Permanent URI for this collection

Now showing 1 - 1 of 1

EndoNeeds Phase 1: a protocol for research exploring the physical, psychological and social needs of Australian women with endometriosis.

Steele, Emma ( 2017)

Endometriosis is a chronic gynaecological condition that causes pain and infertility and can have a significant impact on the physical, psychological and social wellbeing of women. This thesis outlines the protocol for exploratory qualitative research that is required to develop a survey for women with endometriosis that will measure the things they need to improve their wellbeing – their unmet needs. If unmet needs can be measured, targeted interventions can be designed to meet these needs, and ultimately improve quality of life. The aim of this research is to identify key needs and domains of needs in this population. The research will be conducted using focus group discussions, and data will be analysed using a grounded theory approach to identify needs to include in the unmet needs survey. An important way of enhancing the content validity of survey instruments is through the involvement of patients in their development, through exploratory qualitative research. In this case, the identification of a broad range of needs in this population will aid in the development of a robust, easy to use instrument that can be used to inform clinical practice at an individual and population level.