Melbourne School of Government - Theses

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    Governing disability in Indonesia: lesson learnt from self-directed disability support in Australia
    Jufri, Nurlaela ( 2019)
    This study investigates the possibilities of implementing self-directed disability support (SDDS) in Indonesia by drawing on Australian SDDS framework as case study. Through a thematic analysis of documents relating to the most recent reforms to Australian disability policy, the study explores the specific issues arising from the Australian case in implementing SDDS framework and define the six care and support right principle to be taken in the study of Indonesian case. It highlights the ethics of care perspective, right-based discourse and citizenship rights framework which manifested through a set of principles for designing and evaluating care and support policy. The principle is an extending previous academic effort from a scholar that used in the study that provide a more comprehensive guidance to formulating policies that promoting equal choice, control and independence to PwD. Applying the principle to the case study demonstrates how SDDS framework is successfully in governing disability in Australia. It shows Australian experience in designing policies that afford equal care and support rights to PwD by situating choice, control and independence as core of social citizenship. Given the detailed guidance in formulating disability policy, Australian SDDS context is useful as policy learning for exploring how promoting citizens right through independence, choice and control could address Indonesian paternalistic disability policy. Using the principle to the existing Indonesian disability policy, the findings shows that the current Indonesian disability policy does not fully address either ethics of care perspective and social citizenship right to obtain and to give care and support right services. The policy at best indirectly offers a continuing payment cohort of PwD particularly with severe medical condition yet only to fulfill basic needs. As regard to the great differences of both Australian and Indonesian context, it is evident from the study that the socio-cultural and political context in Indonesia is creating new possibilities of SDDS as the new framework to reform the current disability in Indonesia because SDDS framework is relevant in terms of sociologically, philosophically and juridically in the contemporary Indonesia.