Nursing - Theses

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    An exploration of the nursing role in a telehealth based stroke secondary prevention program
    Jackson, David Andrew Gardner ( 2017)
    This research study set out to explore a specialist nursing role in the field of Telehealth for chronic disease management. This study aimed to explore the role of the nurse through measurement of nursing activity during the one-year period of participant follow-up. The study aimed to effect long-term secondary prevention of stroke through an evidence based approach to the management of modifiable cardiovascular risk factors and post stroke depression in the community setting. Research suggests that up to 80% reduction of risk of successive stroke can be achieved if recommendations from evidence-based guidelines are implemented. Notwithstanding these findings a gap exists in the implementation of preventative strategies for stroke survivors in the community. Results from previous research indicate that Telehealth is cost effective and potentially may significantly reduce socioeconomic burden and the probability of successive stroke. A small number of studies have highlighted potential mechanisms through which Telehealth can benefit the stroke survivor, carers, families and health professionals. Researchers have recommended more research into Telehealth in order to develop and to define effective interventions. A pilot randomised controlled trial (RCT) conducted at two metropolitan hospitals showed positive results in risk factor and depression outcomes. Integral to this model of care was the role of the nurse. In the current nurse-led, nested multicentre RCT, study nurses gained increased telephone access, to follow-up and support stroke survivors and their General Practitioners. There were 93 participants (43 intervention) recruited from four metropolitan hospitals over a period of two years. Nursing staff were integrated with the multidisciplinary team in designated stroke centres and General Practitioners in the community. Specialists were available to participate in shared care. Telephone follow-up was initially attenuated by risk for second stroke, with high-risk individuals receiving a greater frequency of follow-up. The results indicated that nurses engaged in both fundamental nursing process and advanced activities to assist stroke survivors through transitions across the health landscape after stroke. Case management, assessment and care planning were frequent fundamental activities and occupied a relatively large percentage of the nurse’s time. The mean difference in outcome systolic blood pressure was significantly improved in the intervention group. The mean difference in post stroke depression screening score was significantly better for the intervention group. Lifestyle modification in particular physical activity was better in the intervention group. The results add support to the place of nursing in the ongoing care of stroke survivors in the community setting.
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    How do patients with lung cancer experience radiation induced oesophagitis?
    Duffy, Mary ( 2016)
    Patients with lung cancer who receive radiotherapy to their chest may experience the specific treatment toxicity of radiation induced oesophagitis (RIO) if the oesophagus is included in the radiotherapy treatment field. RIO causes significant pain and distress to patients. There is a lack of evidence to guide appropriate management. There is also a lack of information on how patients experience this toxicity. This qualitative, exploratory study examined the experience of RIO described by patients with lung cancer who received RT to the chest, either alone or in combination with chemotherapy. The aims of this project were to: • identify the properties and characteristics of RIO as experienced by the patient having radiotherapy to the chest for lung cancer, • understand how these properties and characteristics change over time, • understand the patient experience of ongoing symptoms following completion of radiotherapy, • identify aspects of the RIO experience amenable to nursing interventions that will assist in the management of RIO and, • establish research questions to test specific nursing interventions for RIO. The Theory of Unpleasant Symptoms (TOUS) was chosen as the conceptual framework for the development of the semi-structured interviews and analysis. Two cohorts of patients were recruited to address the research questions used in this study. Cohort 1 consisted of patients who were actively receiving cancer treatment and experiencing RIO. This cohort provided insight into the experience of RIO in the acute setting, including onset and progression. Cohort 2 consisted of patients who completed treatment for primary lung cancer within the last six months and who experienced Grade 3 RIO at some stage during their treatment. Cohort 2 provided insight into the recovery trajectory following RIO, including long term changes. Semi-structured patient interviews were used to capture the patients experience and recovery of RIO. The interviews sought to identify the properties and characteristics of the pain and swallowing difficulties as described by all patients as well as other relevant features of the experience. Content analysis was used to analyse interview data. Four patient stories were chosen from the interviews to illustrate the overall experience of RIO and recovery as a means of providing context to the findings of this study. These vignettes illustrate the increasing impact on daily life as the severity of RIO increased. The extracted statements identified from the interviews were organised into the four central predetermined categories to describe the experience of RIO: (1) pain, (2) swallowing, (3) management and (4) the impact or bother of the experience of RIO. TOUS provided a framework to capture the symptom dimensions of quality, intensity, duration and associated distress of RIO for each of these categories as experienced by the patients. The patient statements extracted from the interviews were organised into four categories to describe the experience of recovery from Grade 3 RIO. The four categories were (1) memory of pain and swallowing difficulties, (2) time to recovery, (3) long term effects on swallowing and (4) advice for future patients. New knowledge of RIO gained from this study shows that experience changes across the trajectory of RIO, that pain and swallowing are inter-related and require combined therapeutic approaches and that while healing occurs, some swallowing difficulty can persist for some patients.
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    Family function and congenital heart disease
    Goldsworthy, Michelle Lorna ( 2013)
    Introduction: Congenital heart disease (CHD) is one of the most common birth defects, and the most complex defects often require cardiac surgery in early infancy. Cardiac surgery typically requires intensive care unit admission. The ongoing effect on the family from having a baby with CHD that requires surgery in early infancy has been incompletely defined. Aim: To describe family function and the burden of having an infant with operated CHD, in the families of two year-olds who underwent surgery for CHD in early infancy. Method: The primary caregivers (n = 99) of young infants (less than 8 weeks of age) that required cardiac surgery in Melbourne, Australia and Auckland, New Zealand completed a series of psychosocial questionnaires assessing family function, family burden, significant life stress, and coping style when their child with CHD was 2 years old. Initial surgery complexity (RACHS-1), need for reoperation, maternal education, timing of diagnosis, and intensive care length of stay was also collected. Results: Healthy family function was found in the majority (79%), Unhealthy family function related to significant life stress (p < 0.02) and avoidance coping style (p < 0.02). Unhealthy family function did not relate to complexity of surgery, diagnostic class, need for reoperation, intensive care length of stay, or maternal education. There was a greater family burden for those with more complex lesions (single ventricle physiology with initial palliation) compared to less complex lesions (biventricular physiology requiring corrective surgery) (p < .02). Conclusion: The majority of families of two year-olds with operated CHD had healthy family function. Unhealthy family function was not related to surgical complexity, reoperation, or diagnostic class, but was related to significant life stress and coping style. Families that indicated a higher level of maternal education were more likely to utilise an adaptive style of coping. However those with a lower level of maternal education were more likely to utilise a less adaptive style of coping. Maternal education per se did not influence family function or family burden however coping style did. Family burden was greater for those that required reoperation and had a greater surgical complexity and significant life stress.
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    A pilot study to test a novel, nurse-led intervention to enhance the general health status of survivors of Hodgkin lymphoma attending a multidisciplinary, haematology late effects clinic
    Gates, Priscilla Ruth ( 2013)
    Background: The increasing numbers of Hodgkin Lymphoma (HL) survivors has raised awareness of the need to optimise long-term health outcomes and quality of life for this group of people. Objective: To develop and pilot-test the feasibility and potential of a nurse-led survivorship intervention to enhance survivors of HL awareness of health risks and adoption of healthy lifestyle behaviours. Methods: A pre-test, post-test design was used. Thirty survivor participants and 30 healthy controls were recruited to the study. Data were collected using the General Health Index and the Health Promoting Lifestyle Profile II at four time points. The intervention included: i) exploration of knowledge of health risks and lifestyle behaviours; ii) delivery of a tailored education package; iii) screening for unmet supportive care needs and iv) development and delivery of a tailored survivorship care plan. Results: Despite length of time since end of treatment a considerable profile of unmet need was identified. More than half of the survivor participants (57%) reported some level of fatigue for most of the time in the last two weeks; 47% reported feeling a lot of worry; 37% reported sleep problems; and 23% reported feeling depressed. Statistically significant improvements were seen for several domains. These included: physical activity (p=0.014); nutrition (p=0.0005); stress management (p=0.002) and health promoting lifestyle (p=0.005) from baseline to 6 months. No additional resources were required to provide the intervention as all aspects were delivered within existing resources of the haematology late effects clinic. Conclusion: The nurse-led intervention was shown to be feasible and demonstrated significant potential to improve awareness of health status and healthy lifestyle behaviours among survivors of HL. A randomised controlled trial is now needed to further test the efficacy of the intervention; determine optimal dose and the best time to deliver the intervention to prevent the levels of physical and emotional need reported by this study group, being reported by survivors of HL in the future.
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    Mental health nurses’ decision making for people presenting to the emergency department with deliberate self-harm
    PHILLIPS, GRANT ( 2012)
    BACKGROUND: The management of deliberate self-harm presentations in Australia has increasingly become the responsibility of the hospital Emergency Department (ED). Assessment in Victoria is primarily the responsibility of mental health nurses who are based in the hospital EDs. They assess the presentation and implement appropriate disposition of these patients. The dispositional outcome depends on an assessment of the risks associated with the presentation and the principles of managing the patient in the least restrictive environment. In most cases the dispositional outcome and subsequent treatment is unremarkable and successful. When there is a suicide, there has been a tendency in the media to at times apportion blame to the clinicians for failing to prevent the patient killing themselves. The underlying assumption is that there is a “gold standard” and that clinicians should agree on dispositions for similar types of presentations. This assumption is not supported by research. The proposition that there is agreement in dispositional decision making throughout the industry is not examined in existing research. It is this gap that the present study sets out to explore. AIMS: 1. To investigate variations in patient disposition decisions, following deliberate self-harm risk assessment by Australian mental health nurses. 2. To explore the demographic factors of clinicians that may affect dispositional decision making for deliberate self-harm risk assessment. 3. To explore the clinician’s reasoning processes, leading to their dispositional decision making. CONCEPTUAL MODEL: A conceptual model of the safety and risk factors related to deliberate self harm presentations was developed and was informed by a literature review. This model was based on the demographic characteristics of the patient, level of social connectedness and intellectual functioning. This differed from the widely accepted model that utilises diagnostic categories and demographics. From this model a series of vignettes was developed. Two vignettes were designed to test the model (one that had very high safety factors and one with very low safety factors). A further seven cases were constructed with varying levels of perceived risk and safety. These vignettes were distributed to experts in the field to test for content validity and were found to be representative of typical deliberate self-harm presentations to EDs. METHODS: A cross sectional survey was administered to mental health nurses who were members of the Australian College of Mental Health Nurses. Questions were asked about the demographics of the participant along with a series of questions about the vignettes. Participants were asked about their perceptions of the deliberate self-harm intent of the subject and the disposition that the participant believed was appropriate for that vignette. For each of the questions, reasons for the decision were sought. RESULTS: The survey achieved 210 completed responses 56 of these were from the conference. Outcome was based on agreement and explanation. The quantitative results showed a significant agreement on deliberate self-harm intent across all but one of the vignettes by participants. The two test vignettes achieved agreement on disposition giving confidence in the model. The remaining seven vignettes, designed to balance safety and risk factors, showed poor levels of agreement for disposition. No demographic data consistently explained this variation. In the qualitative analysis the reasons given for dispositional decision in some cases were as conflicted as the decisions themselves. Often the same justification was given for treatment in the community and for a decision to hospitalise. CONCLUSION: Agreement was reached across clinicians on the assessment of deliberate self-harm intent. Only in one vignette was the null point included in the confidence intervals. There was a lack of agreement as to appropriate disposition between clinicians. This finding indicates a high level of subjectivity in dispositional decision making and suggests that for the same presentation different clinicians would make different dispositional decisions. The current work has highlighted individual differences between clinicians assessing in isolation, further research is indicated to investigate the effect of team dynamics on decision making. The findings of such research may prove useful as a tool for testing the formative and normative functions of peer supervision within a team environment. This may help understand the dynamics of decision making within the team and assist that team work towards understanding the dynamics at work in dispositional decision making.
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    Quality of life assessment in children requiring oral anticoagulant therapy
    Jones, Sophie Elizabeth ( 2011)
    The absence of robust evidence regarding the management and clinical outcomes of anticoagulant therapy in children challenges interpretation of the risks and benefits of long-term anticoagulation therapy for children. Decisions about treatment increase in complexity in light of the potential burden of treatment on children and families. Quality of life (QoL) is a recognised and validated measure of the burden of treatments for children; yet, there is a lack of data about the impact of long-term warfarin therapy on QoL for children and families. This thesis describes the first study to evaluate the impact of a home international normalised ratio (INR) self-testing (home ST) program on the QoL of children and their families. The aim of the study was to determine if participation in a home ST program improves QoL for children requiring long-term warfarin therapy and their families. Parents of children requiring long-term warfarin therapy and children aged eight to 18 years participated in the QoL study. Three validated QoL questionnaires, the Pediatric Quality of life Inventory Generic Core Scale™, the Pediatric Quality of Life Family Impact Module™ and the KIDCLOT Pediatric Anticoagulation Quality of Life © inventory were employed to measure QoL. Questionnaires were completed before commencing home ST and six to 12 months later. Participants answered four open-ended questions when completing the questionnaires for the second time. Fifty-six families entered the home ST program during the study period. The children were aged between 2 and 17 years. Fifty-five parents and 35 children completed QoL questionnaires. Results of INRs tested at home were collected. The percentage of time the children’s INRs were in their target therapeutic range was 71.3%, which is comparable to many published paediatric studies of home ST. Parents reported statistically significant improvements in QoL for themselves, their family and their child, across all questionnaires following the commencement of home ST (mean difference in score p ≤ 0.003 on all questionnaires). The children’s scores of their own QoL also improved; however, this improvement was not significant. Parents’ report of their children’s QoL was significantly lower than the children’s report of QoL on all questionnaires at both time points. As well as being the first validated baseline QoL data in an Australian population of children requiring oral anticoagulant therapy, this study reports QoL for the largest cohort of children requiring warfarin therapy worldwide. The employment of both quantitative and qualitative methods to assess QoL enhanced understanding about the impact of home ST on QoL. This study has demonstrated that home ST in a population of children requiring long-term warfarin therapy is safe, efficacious and improves the QoL of children and parents. This study confirms home ST successfully reduced the burden of therapy and maintained excellent clinical outcomes. The results of this study not only identify the impact of warfarin therapy upon QoL in children, but offer an alternative evaluation strategy to sensitively measure the impact of interventions in this population. Accurate QoL assessments ensure children’s and families’ values are integrated with the current evidence for best clinical practice.
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    Sliding doors: how we can effectively manage the transition from palliative hospice care to residential care
    Kallianis, Voula ( 2011)
    The increasing survival of patients with advanced-stage cancer, coupled with the increased presence of end-stage chronic illness in an ageing population, is leading to an increase in demand for patients requiring palliative care. Due to the ongoing need for acute-pain and symptom control in hospice/palliative care units, few of these are able to offer any long-stay admission for those whose symptoms have been stabilised. Transfer from an inpatient palliative care facility may then be necessary, when a patient is considered to be no longer requiring specialist palliative care services. A core component of the role of palliative-care social workers involves working with patients and their families/carers1 when the care pathway shifts and the option of residential care (in this context, nursing homes) needs to be considered. As a social work clinician, I have observed that, when this process has been considered or contemplated, the patient and their families often display anxiety, anger and distress. This practice research study has explored several issues, including the impact of this transition on the patient and their families and on the interdisciplinary healthcare team treating the patient. This study has analysed this phenomenon in two ways. In the first part of the study, a data-mining process was utilised. A sample of 30 consecutive patients who were assessed as being eligible for high-level care (or nursing-home level care) was included. Medical files/histories were reviewed using an audit tool that was developed based on the literature review. The salient or pertinent characteristics of the population group were documented. In the second part of the study, an investigation was undertaken to identify concerns and barriers regarding the transition from hospice care to residential care and highlight the opportunities to improve clinical practice in this area. This investigation analysed the literature and clinical practice, and interviewed the key stakeholders involved in this process. A tripartite approach was adopted by conducting face-to-face interviews with patients, their carers and members of the interdisciplinary healthcare team. As social work clinicians have a substantive role in this area of transition, telephone interviews were also conducted with 10 social workers working in similar inpatient palliative-care facilities in the area of Victoria to gauge their experiences. A thematic analysis discerned a number of common themes highlighting the impact and difficulties of this transition on the key stakeholders. The results suggested recommendations to improve or best manage this process and service delivery. The research study has highlighted the difficulties that patients/families encounter in the transition from palliative care in a hospice to nursing home care and emphasises the importance of protecting the integrity of the patient and family by holding open and continuous dialogue, particularly through family meetings, and working in collaboration with the patient, the family and the team. Understanding the experience of this transition is crucial to the knowledge required to provide psychosocial care to this population. This practice-based research study incorporates the ‘voices’ of terminally ill patients, families and members of the healthcare team on matters directly affecting them. Their views and recommendations for best managing the transition from a hospice/inpatient palliative-care facility to a residential-care facility has been documented with the hope of enabling their input to have some real impetus on clinical practice and service delivery. The importance of this work is that it highlights issues that can arise in the terminal phase of illness and illustrates the benefits of practice based, qualitative research.
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    Mechanical restraint in acute health: identifying staff perceptions, alternatives and the sustainability of restraint reduction initiatives
    Daniel, Catherine Elizabeth ( 2010)
    Aim: This research aimed to measure the impact of mechanical restraint reduction strategies in one acute hospital. Background: Restraint is used to prevent falls, treatment interference and to manage agitation. However, there is no evidence to support its use. A previous restraint policy was implemented at the study site in 2005 however there was no evaluation of practice and staff had limited awareness of the risks to patients who were restrained. Setting: The Royal Melbourne Hospital is an inner city 330 bed acute tertiary referral hospital including trauma, neurosciences and emergency services. Method: An action research approach was used to minimise the use of mechanical restraint and to improve the care provided to patients when mechanical restraint was used. The intervention phase included consultation with staff and implementing a structured education session to highlight the risks associated with restraint use, policy requirements to minimise the use of restraint and maintaining patient safety when restraint is used. Resources were developed to promote minimising restraint use including a poster of alternatives to restraint and a flowchart of policy requirements. Mechanical restraint use was measured by auditing at three time points to determine if changes in practice were sustainable. The use of bed rails was recorded when they had been raised in the previous 24 hours. The use of ankle/wrist restraint was included if it was used during the admission until the day of the audit. Staff completed a cross sectional survey (Perception of Restraint Use (PRUQ), Evans & Strumpf, 1990) before (n=248) and after (n=213) education to determine how important staff considered restraint was in managing different clinical situations such as falls, agitation and treatment interference. The convenience sample consisted of staff working in acute wards and included nursing, medical and allied health professionals. Results: The use of bed rails reduced from 58% (195/338) at baseline (T1) to 48% (159/329) post intervention (T2). A final audit conducted 9 months later (T3) found the use of bed rails had further reduced to 30.6% (102/333). There was a 60% (n=66) reduction in staff reporting falls prevention as the rationale for bed rail use. The use of ankle and wrist restraint was not reduced by restraint reduction initiatives. Ankle and wrist restraint was used for 2.6% (12/338) of patients at T1 and increased at T2 to 5.7% (19/329). A final audit (T3) found a reduction to 2.7% (9/333). Documentation was improved from the baseline audit when the restraint duration could not be determined due to restraint charts not being completed and limited nursing entries to indicate when restraints were applied and removed. The PRUQ (Evans & Strumpf, 1990) was completed by 248 staff before and 213 staff after the intervention phase. The baseline questionnaire was completed by 26% (n=191) of nurses in clinical roles and 24% (n=183) post intervention. The PRUQ identified a significant change in 2 items; that restraint was considered less important to prevent patients pulling out intravenous lines (p= 0.043) however, staff considered restraint more important as a substitute for staff observation (p= 0.036). Although staff considered restraint less important in 13 items they found restraint more important to manage falls, unsafe ambulation and provide rest for an overactive person. The qualitative comments provided by participants on the PRUQ represented a wide range of views. In particular, comments highlighted the complex nature of restraint reduction strategies. Responses included support for restraint minimisation strategies and also the challenges of providing increased observation while patients were restrained and nursing workload. Discussion: The use of mechanical restraint at the study site was reduced. The study demonstrated that the safety of patients who do require restraint can be improved through the use of policy, education initiatives and considering alternatives to restraint. Restraint minimisation in acute health depends on an individualised approach to patient care including the use of an evidence-based approach to preventing delirium and managing behavioural and psychological symptoms of dementia. The suitability of initiatives must to be considered to support long-term changes in practice.