Computing and Information Systems - Research Publications
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ItemBetter Health Explorer: Designing for Health Information Seekers(Association for Computing Machinery, 2015)A vast amount of health information has been published online, yet users often report difficulties in locating information in this particular domain. Based on our prior research, we consider four categories of online health information seekers who demonstrate mixed information needs. Although their searching needs are often well satisfied by entering keywords into search engines, their need to explore information is not so well supported, thus affecting their user experience and satisfaction. In this paper, we propose design principles for supporting the exploration of online health information. We present the rationale and the design process of a web app - Better Health Explorer - which is a proof-of-concept app tailored to health information exploration. This work contributes to the design of online health information systems as well as exploratory systems in general.
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ItemBetter health information exploration(ACM, 2015-12-07)The provision of health information has to be clear and appealing to users. Research has shown that health information seekers do not all have the same attributes, skills or needs. In any given health-related app or website, there is a need to provide tools for accessing information in ways that appeal to users. This is not always supported by current web technologies. As such, based on prior research on health information seeking behaviour and needs, we designed and created a proofof- concept website named Better Health Explorer to experiment on health information seekers. The pilot results show a positive effect on supporting and improving the experience of seekers with exploratory search behaviour.
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ItemThe Twitter Adventure of #MyHealthRecord: An Analysis of Different User Groups During the Opt-Out Period.(IOS Press, 2019-08-08)My Health Record (MHR), which is an online health summary for Australians, was changed from the opt-in to the opt-out model, and therefore sparked a vast discussion on Twitter. In order to understand the debate, the information dissemination and the levels of engagement, we have analysed tweets posted from July 2018 to February 2019. In this paper, we report on the findings of the patterns of discussion, the hashtags and the numbers of retweets and likes from different user categories. The results show that the discussion was highly political, and the tweets from the MHR official accounts had lower propagation and engagement than other user groups. This work highlights the implications of using social networking sites (SNSs) to promote large-scale mandatory electronic health record systems.
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ItemThe Use of Web-Based Technologies in Health Research Participation: Qualitative Study of Consumer and Researcher Experiences(JMIR Publications, 2018-10-01)Background: Health consumers are often targeted for their involvement in health research including randomized controlled trials, focus groups, interviews, and surveys. However, as reported by many studies, recruitment and engagement of consumers in academic research remains challenging. In addition, there is scarce literature describing what consumers look for and want to achieve by participating in research. Objective: Understanding and responding to the needs of consumers is crucial to the success of health research projects. In this study, we aim to understand consumers’ needs and investigate the opportunities for addressing these needs with Web-based technologies, particularly in the use of Web-based research registers and social networking sites (SNSs). Methods: We undertook a qualitative approach, interviewing both consumer and medical researchers in this study. With the help from an Australian-based organization supporting people with musculoskeletal conditions, we successfully interviewed 23 consumers and 10 researchers. All interviews were transcribed and analyzed with thematic analysis methodology. Data collection was stopped after the data themes reached saturation. Results: We found that consumers perceive research as a learning opportunity and, therefore, expect high research transparency and regular updates. They also consider the sources of the information about research projects, the trust between consumers and researchers, and the mobility of consumers before participating in any research. Researchers need to be aware of such needs when designing a campaign for recruitment for their studies. On the other hand, researchers have attempted to establish a rapport with consumer participants, design research for consumers’ needs, and use technologies to reach out to consumers. A systematic approach to integrating a variety of technologies is needed. Conclusions: On the basis of the feedback from both consumers and researchers, we propose 3 future directions to use Web-based technologies for addressing consumers’ needs and engaging with consumers in health research: (1) researchers can make use of consumer registers and Web-based research portals, (2) SNSs and new media should be frequently used as an aid, and (3) new technologies should be adopted to remotely collect data and reduce administrative work for obtaining consumers’ consent.
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ItemEngaging Consumers with Musculoskeletal Conditions in Health Research: A User-entred Perspective(IOS PRESS, 2017)Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes: (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumer-based studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.
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ItemFinding and Exploring Health Information with a Slider-Based User Interface(IOS PRESS, 2016)Despite the fact that search engines are the primary channel to access online health information, there are better ways to find and explore health information on the web. Search engines are prone to problems when they are used to find health information. For instance, users have difficulties in expressing health scenarios with appropriate search keywords, search results are not optimised for medical queries, and the search process does not account for users' literacy levels and reading preferences. In this paper, we describe our approach to addressing these problems by introducing a novel design using a slider-based user interface for discovering health information without the need for precise search keywords. The user evaluation suggests that the interface is easy to use and able to assist users in the process of discovering new information. This study demonstrates the potential value of adopting slider controls in the user interface of health websites for navigation and information discovery.
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