School of Historical and Philosophical Studies - Research Publications
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ItemSilence and the History of Menstruation(Oral History Association of Australia, 2007)Oral history is often concerned not only with what is said but also with silences and what they might mean—what is omitted from interview responses or the historical record, and in this case, omission from both social discourse and research in general about women’s experience of what is virtually a universal experience for them. From interviews with twelve women, the author sought to ‘penetrate the veil of silence’ and transcend the dearth of documentary evidence about the meaning of menstruation in women’s lives. Interviews ‘yielded fascinating and complex responses that opened up questions rather than providing definitive answers. Perhaps the most profound insight gained through the project was an appreciation of the power of silence, which can communicate more loudly than words.’
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ItemNo Preview AvailableChinese health biotech and the billion-patient market(NATURE PUBLISHING GROUP, 2008-01)UNLABELLED: Chinese government support and 'sea turtles' are spurring the sector, but investors lack exits. SUPPLEMENTARY INFORMATION: The online version of this article (doi:10.1038/nbt0108-37) contains supplementary material, which is available to authorized users.
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ItemNo Preview AvailableScience and society -: Genomic medicine and developing countries:: creating a room of their own(NATURE PUBLISHING GROUP, 2008-06)The notion that developing countries must wait for the developed world to make advances in science and technology that they later import at great cost is being challenged. We have previously argued that developing countries can harness human genetic variation to benefit their populations and economies. Based on our empirical studies of large-scale population genotyping projects in Mexico, India and Thailand, we describe how these resources are being adopted to improve public health and create knowledge-based economies. A significant additional benefit is building the capacity for scientific research and internalizing advances in technology, whatever their source.
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ItemNo Preview Available1980-2005: bioethics then and now.(Springer Science and Business Media LLC, 2006-01)In this article we examine the role and ethics of communications in planning for an influenza pandemic. We argue that ethical communication must not only he effective, so that pandemic plans can be successfully implemented, communications should also take specific account of the needs of the disadvantaged, so that they are not further disenfranchised. This will require particular attention to the role of the mainstream media which may disadvantage the vulnerable through misrepresentation and exclusion.
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ItemRegenerative medicine and the developing world(PUBLIC LIBRARY SCIENCE, 2006-09)This is the first study to systematically identify and prioritize which applications of regenerative medicine are the most promising for improving health in developing countries.
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ItemJust regionalisation: rehabilitating care for people with disabilities and chronic illnesses.(Springer Science and Business Media LLC, 2006-08-29)BACKGROUND: Regionalised models of health care delivery have important implications for people with disabilities and chronic illnesses yet the ethical issues surrounding disability and regionalisation have not yet been explored. Although there is ethics-related research into disability and chronic illness, studies of regionalisation experiences, and research directed at improving health systems for these patient populations, to our knowledge these streams of research have not been brought together. Using the Canadian province of Ontario as a case study, we address this gap by examining the ethics of regionalisation and the implications for people with disabilities and chronic illnesses. The critical success factors we provide have broad applicability for guiding and/or evaluating new and existing regionalised health care strategies. DISCUSSION: Ontario is in the process of implementing fourteen Local Health Integration Networks (LHINs). The implementation of the LHINs provides a rare opportunity to address systematically the unmet diverse care needs of people with disabilities and chronic illnesses. The core of this paper provides a series of composite case vignettes illustrating integration opportunities relevant to these populations, namely: (i) rehabilitation and services for people with disabilities; (ii) chronic illness and cancer care; (iii) senior's health; (iv) community support services; (v) children's health; (vi) health promotion; and (vii) mental health and addiction services. For each vignette, we interpret the governing principles developed by the LHINs - equitable access based on patient need, preserving patient choice, responsiveness to local population health needs, shared accountability and patient-centred care - and describe how they apply. We then offer critical success factors to guide the LHINs in upholding these principles in response to the needs of people with disabilities and chronic illnesses. SUMMARY: This paper aims to bridge an important gap in the literature by examining the ethics of a new regionalisation strategy with a focus on the implications for people with disabilities and chronic illnesses across multiple sites of care. While Ontario is used as a case study to contextualize our discussion, the issues we identify, the ethical principles we apply, and the critical success factors we provide have broader applicability for guiding and evaluating the development of - or revisions to - a regionalised health care strategy.