University Library
  • Login
A gateway to Melbourne's research publications
Minerva Access is the University's Institutional Repository. It aims to collect, preserve, and showcase the intellectual output of staff and students of the University of Melbourne for a global audience.
View Item 
  • Minerva Access
  • Medicine, Dentistry & Health Sciences
  • Melbourne School of Health Sciences
  • Physiotherapy
  • Physiotherapy - Research Publications
  • View Item
  • Minerva Access
  • Medicine, Dentistry & Health Sciences
  • Melbourne School of Health Sciences
  • Physiotherapy
  • Physiotherapy - Research Publications
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

    'We are very individual': anticipated effects on stroke survivors of using their person-generated health data.

    Thumbnail
    Download
    published version (655.0Kb)

    Citations
    Altmetric
    Author
    Dimaguila, GL; Batchelor, F; Merolli, M; Gray, K
    Date
    2020-09-13
    Source Title
    BMJ Health & Care Informatics
    Publisher
    BMJ Publishing Group
    University of Melbourne Author/s
    Gray, Kathleen; Batchelor, Frances; Merolli, Mark; Dimaguila, Gerardo
    Affiliation
    Physiotherapy
    Melbourne School of Health Sciences
    Metadata
    Show full item record
    Document Type
    Journal Article
    Citations
    Dimaguila, G. L., Batchelor, F., Merolli, M. & Gray, K. (2020). 'We are very individual': anticipated effects on stroke survivors of using their person-generated health data.. BMJ Health & Care Informatics, 27 (3), pp.e100149-e100149. https://doi.org/10.1136/bmjhci-2020-100149.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/251604
    DOI
    10.1136/bmjhci-2020-100149
    Open Access at PMC
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7488803
    Abstract
    BACKGROUND: Person-generated health data (PGHD) are produced by people when they use health information technologies. People who use PGHD may experience changes in their health and care process, such as engagement with their own healthcare, and their sense of social support and connectedness. Research into evaluating those reported effects has not kept up; thus, a method for measuring PGHD outcomes was previously designed and applied to the exemplar case of Kinect-based stroke rehabilitation systems. A key step of the method ensures that the patient's voice is included. Allowing stroke survivors to participate in the development and evaluation of health services and treatment can inform healthcare providers on decisions about stroke care, and thereby improve health outcomes. OBJECTIVE: This paper presents the perspectives of stroke survivors and clinicians on the anticipated effects of stroke survivors' use of PGHD from a poststroke simulated rehabilitation technology. METHODS: This study gathered the perspectives of stroke survivors and clinicians through three focus groups and three interviews, recruited for convenience. Participants were also asked questions intended to encourage them to comment on the initial items of the patient-reported outcome measure-PGHD. Deductive thematic analysis was performed. RESULTS: This paper has further demonstrated that outcomes of using PGHD can be measured. For instance, stroke survivors described that using PGHD could result in positive, negative and nil effects on their health behaviours. Survivors and clinicians had varying perspectives in three of the six themes presented, and emphasise the importance of allowing stroke survivors to participate in the evaluation of digital health services.

    Export Reference in RIS Format     

    Endnote

    • Click on "Export Reference in RIS Format" and choose "open with... Endnote".

    Refworks

    • Click on "Export Reference in RIS Format". Login to Refworks, go to References => Import References


    Collections
    • Minerva Elements Records [52443]
    • Melbourne School of Health Sciences Collected Works - Research Publications [197]
    • Physiotherapy - Research Publications [460]
    Minerva AccessDepositing Your Work (for University of Melbourne Staff and Students)NewsFAQs

    BrowseCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsThis CollectionBy Issue DateAuthorsTitlesSubjects
    My AccountLoginRegister
    StatisticsMost Popular ItemsStatistics by CountryMost Popular Authors