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    Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia

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    Author
    Newson, AJ; Ayres, S; Boyle, J; Gabbett, MT; Nisselle, A
    Date
    2018-12-01
    Source Title
    Twin Research and Human Genetics
    Publisher
    CAMBRIDGE UNIV PRESS
    University of Melbourne Author/s
    Nisselle, Amy
    Affiliation
    Paediatrics (RCH)
    Metadata
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    Document Type
    Journal Article
    Citations
    Newson, A. J., Ayres, S., Boyle, J., Gabbett, M. T. & Nisselle, A. (2018). Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia. TWIN RESEARCH AND HUMAN GENETICS, 21 (6), pp.533-537. https://doi.org/10.1017/thg.2018.60.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/253157
    DOI
    10.1017/thg.2018.60
    Abstract
    The expansion of genetic and genomic testing in clinical practice and research and the growing market for at home personal genome testing has led to increased awareness about the impact of this form of testing on insurance. Genetic or genomic information can be requested by providers of mutually rated insurance products, who may then use it when setting premiums or determining eligibility for cover under a particular product. Australian insurers are subject to relevant legislation and an industry standard that was updated in late 2016. In 2018, the Human Genetics Society of Australasia updated its position statement on genetic testing and life insurance to account for these changes and to increase the scope of the statement to include a wider scope of insurance products that are not rated according to community risk, such as life, critical care, and income protection products. Recommendations include that providers of professional education involving genetics should include ethical, legal, and social aspects of insurance discrimination in their curricula; that the Australian government take a more active role in regulating use of genetic information in personal insurance, including enacting a moratorium on use of genetic test results; that information obtained in the course of a research project be excluded; and that there is improved engagement between the insurance industry, regulators, and the genetics profession.

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