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    Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset.

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    Author
    Ruseckaite, R; Beckmann, K; O'Callaghan, M; Roder, D; Moretti, K; Zalcberg, J; Millar, J; Evans, S
    Date
    2016-01-22
    Source Title
    BMC Research Notes
    Publisher
    Springer Science and Business Media LLC
    University of Melbourne Author/s
    Zalcberg, John
    Affiliation
    Medicine and Radiology
    Metadata
    Show full item record
    Document Type
    Journal Article
    Citations
    Ruseckaite, R., Beckmann, K., O'Callaghan, M., Roder, D., Moretti, K., Zalcberg, J., Millar, J. & Evans, S. (2016). Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset.. BMC Res Notes, 9 (1), pp.37-. https://doi.org/10.1186/s13104-016-1855-3.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/255291
    DOI
    10.1186/s13104-016-1855-3
    Open Access at PMC
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4724115
    Abstract
    BACKGROUND: Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD). RESULTS: A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State. CONCLUSIONS: The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.

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