University Library
  • Login
A gateway to Melbourne's research publications
Minerva Access is the University's Institutional Repository. It aims to collect, preserve, and showcase the intellectual output of staff and students of the University of Melbourne for a global audience.
View Item 
  • Minerva Access
  • Medicine, Dentistry & Health Sciences
  • Melbourne School of Psychological Sciences
  • Melbourne School of Psychological Sciences - Research Publications
  • View Item
  • Minerva Access
  • Medicine, Dentistry & Health Sciences
  • Melbourne School of Psychological Sciences
  • Melbourne School of Psychological Sciences - Research Publications
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

    Developing Written Information for Cancer Survivors from Culturally and Linguistically Diverse Backgrounds: Lessons Learnt

    Thumbnail
    Download
    Published version (494.1Kb)

    Citations
    Scopus
    Altmetric
    3
    Author
    Wiley, G; Piper, A; Butow, PAM; Schofield, P; Douglas, F; Roy, J; Nolte, L; Jefford, M
    Date
    2018-01-01
    Source Title
    Asia-Pacific Journal of Oncology Nursing
    Publisher
    WOLTERS KLUWER MEDKNOW PUBLICATIONS
    University of Melbourne Author/s
    Jefford, Michael; Schofield, Penelope
    Affiliation
    Melbourne School of Psychological Sciences
    Sir Peter MacCallum Department of Oncology
    Metadata
    Show full item record
    Document Type
    Journal Article
    Citations
    Wiley, G., Piper, A., Butow, P. A. M., Schofield, P., Douglas, F., Roy, J., Nolte, L. & Jefford, M. (2018). Developing Written Information for Cancer Survivors from Culturally and Linguistically Diverse Backgrounds: Lessons Learnt. ASIA-PACIFIC JOURNAL OF ONCOLOGY NURSING, 5 (1), pp.121-126. https://doi.org/10.4103/apjon.apjon_63_17.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/255977
    DOI
    10.4103/apjon.apjon_63_17
    Abstract
    Australia is a multicultural nation with a large migrant population. Migrants with cancer report inferior quality of life and the need for more information in their own language. This paper describes lessons learnt from developing culturally appropriate written information resources with and for Arabic, Italian, and Vietnamese cancer survivors and carers. The information needs of survivors from these language groups as well as guidelines for the development of written resources for culturally diverse populations were identified through literature review. Community consultation was undertaken with focus groups. The content was developed and tested with health professionals who spoke the appropriate language and focus group participants, ensuring relevance and appropriateness. Resource design and dissemination were informed through community consultation. A number of key tasks for developing resources were identified as follows: (1) community engagement and consultation; (2) culturally sensitive data collection; (3) focus group facilitators (recruitment and training); (4) content development; (5) translation and review process; (6) design; and (7) sustainability. This project reinforced literature review findings on the importance of cultural sensitivity in the development of resources. Engaging with community groups and incorporating culturally appropriate recruitment strategies optimises recruitment to focus groups and facilitates content development. Stakeholders and lay persons from the intended ethnic-minority communities should be involved in the development and formative evaluation of resources to ensure appropriateness and relevance and in the dissemination strategy to optimize penetration. We believe the lessons we have learnt will be relevant to any group intending to develop health information for culturally and linguistic diverse groups.

    Export Reference in RIS Format     

    Endnote

    • Click on "Export Reference in RIS Format" and choose "open with... Endnote".

    Refworks

    • Click on "Export Reference in RIS Format". Login to Refworks, go to References => Import References


    Collections
    • Minerva Elements Records [45770]
    • Sir Peter MacCallum Department of Oncology - Research Publications [728]
    • Melbourne School of Psychological Sciences - Research Publications [1051]
    Minerva AccessDepositing Your Work (for University of Melbourne Staff and Students)NewsFAQs

    BrowseCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsThis CollectionBy Issue DateAuthorsTitlesSubjects
    My AccountLoginRegister
    StatisticsMost Popular ItemsStatistics by CountryMost Popular Authors