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dc.contributor.authorStaffieri, SE
dc.contributor.authorKearns, LS
dc.contributor.authorSanfilippo, PG
dc.contributor.authorCraig, JE
dc.contributor.authorMackey, DA
dc.contributor.authorHewitt, AW
dc.date.accessioned2020-12-18T04:04:08Z
dc.date.available2020-12-18T04:04:08Z
dc.date.issued2018-01-01
dc.identifierpii: TVST-17-0505
dc.identifier.citationStaffieri, S. E., Kearns, L. S., Sanfilippo, P. G., Craig, J. E., Mackey, D. A. & Hewitt, A. W. (2018). Crowd-sourced Ontology for Photoleukocoria: Identifying Common Internet Search Terms for a Potentially Important Pediatric Ophthalmic Sign. TRANSLATIONAL VISION SCIENCE & TECHNOLOGY, 7 (1), https://doi.org/10.1167/tvst.7.1.18.
dc.identifier.issn2164-2591
dc.identifier.urihttp://hdl.handle.net/11343/256037
dc.description.abstractPurpose: Leukocoria is the most common presenting sign for pediatric eye disease including retinoblastoma and cataract, with worse outcomes if diagnosis is delayed. We investigated whether individuals could identify leukocoria in photographs (photoleukocoria) and examined their subsequent Internet search behavior. Methods: Using a web-based questionnaire, in this cross-sectional study we invited adults aged over 18 years to view two photographs of a child with photoleukocoria, and then search the Internet to determine a possible diagnosis and action plan. The most commonly used search terms and websites accessed were recorded. Results: The questionnaire was completed by 1639 individuals. Facebook advertisement was the most effective recruitment strategy. The mean age of all respondents was 38.95 ± 14.59 years (range, 18-83), 94% were female, and 59.3% had children. An abnormality in the images presented was identified by 1613 (98.4%) participants. The most commonly used search terms were: "white," "pupil," "photo," and "eye" reaching a variety of appropriate websites or links to print or social media articles. Conclusions: Different words or phrases were used to describe the same observation of photoleukocoria leading to a range of websites. Variations in the description of observed signs and search words influenced the sites reached, information obtained, and subsequent help-seeking intentions. Translational Relevance: Identifying the most commonly used search terms for photoleukocoria is an important step for search engine optimization. Being directed to the most appropriate websites informing of the significance of photoleukocoria and the appropriate actions to take could improve delays in diagnosis of important pediatric eye disease such as retinoblastoma or cataract.
dc.languageEnglish
dc.publisherASSOC RESEARCH VISION OPHTHALMOLOGY INC
dc.rights.urihttps://creativecommons.org/licenses/by/4.0
dc.titleCrowd-sourced Ontology for Photoleukocoria: Identifying Common Internet Search Terms for a Potentially Important Pediatric Ophthalmic Sign
dc.typeJournal Article
dc.identifier.doi10.1167/tvst.7.1.18
melbourne.affiliation.departmentOphthalmology (Eye & Ear Hospital)
melbourne.affiliation.departmentCentre for Eye Research Australia (CERA)
melbourne.source.titleTranslational Vision Science and Technology
melbourne.source.volume7
melbourne.source.issue1
dc.rights.licenseCC BY
melbourne.elementsid1307114
melbourne.contributor.authorSanfilippo, Paul
melbourne.contributor.authorMackey, David
melbourne.contributor.authorCraig, Jamie
melbourne.contributor.authorHewitt, Alexander
melbourne.contributor.authorSTAFFIERI, SANDRA
dc.identifier.eissn2164-2591
melbourne.accessrightsOpen Access


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