Including All Voices in International Data-Sharing Governance
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Date
2018Source Title
Human GenomicsPublisher
BioMed CentralAffiliation
Melbourne Law SchoolMetadata
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Journal ArticleCitations
Kaye, J., Terry, S. F., Juengst, E., Coy, S., Harris, J. R., Chalmers, D., Dove, E. S., Budin-Ljosne, I., Adebamowo, C., Ogbe, E., Bezuidenhout, L., Morrison, M., Minion, J. T., Murtagh, M. J., Minari, J., Teare, H., Isasi, R., Kato, K., Rial-Sebbag, E. ,... Cambon-Thomsen, A. (2018). Including All Voices in International Data-Sharing Governance. Human Genomics, 12 (1), https://doi.org/10.1186/s40246-018-0143-9.Access Status
Open AccessAbstract
Governments, funding bodies, institutions, and publishers have developed a number of strategies to encourage researchers to facilitate access to datasets. The rationale behind this approach is that this will bring a number of benefits and enable advances in healthcare and medicine by allowing the maximum returns from the investment in research, as well as reducing waste and promoting transparency. As this approach gains momentum, these data-sharing practices have implications for many kinds of research as they become standard practice across the world.
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