Including All Voices in International Data-Sharing Governance
AuthorKaye, J; Terry, SF; Juengst, E; Coy, S; Harris, JR; Chalmers, D; Dove, ES; Budin-Ljosne, I; Adebamowo, C; Ogbe, E; ...
Source TitleHuman Genomics
University of Melbourne Author/sKaye, Jane
AffiliationMelbourne Law School
Document TypeJournal Article
CitationsKaye, J., Terry, S. F., Juengst, E., Coy, S., Harris, J. R., Chalmers, D., Dove, E. S., Budin-Ljosne, I., Adebamowo, C., Ogbe, E., Bezuidenhout, L., Morrison, M., Minion, J. T., Murtagh, M. J., Minari, J., Teare, H., Isasi, R., Kato, K., Rial-Sebbag, E. ,... Cambon-Thomsen, A. (2018). Including All Voices in International Data-Sharing Governance. Human Genomics, 12 (1), https://doi.org/10.1186/s40246-018-0143-9.
Access StatusOpen Access
Governments, funding bodies, institutions, and publishers have developed a number of strategies to encourage researchers to facilitate access to datasets. The rationale behind this approach is that this will bring a number of benefits and enable advances in healthcare and medicine by allowing the maximum returns from the investment in research, as well as reducing waste and promoting transparency. As this approach gains momentum, these data-sharing practices have implications for many kinds of research as they become standard practice across the world.
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