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    Psychometric properties of the participation scale among former buruli ulcer patients in Ghana and Benin.

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    Author
    de Zeeuw, J; Douwstra, M; Omansen, TF; Sopoh, GE; Johnson, C; Phillips, RO; Alferink, M; Saunderson, P; Van der Werf, TS; Dijkstra, PU; ...
    Date
    2014
    Source Title
    PLoS Neglected Tropical Diseases
    Publisher
    Public Library of Science (PLoS)
    University of Melbourne Author/s
    OMANSEN, TILL
    Affiliation
    Microbiology and Immunology
    Metadata
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    Document Type
    Journal Article
    Citations
    de Zeeuw, J., Douwstra, M., Omansen, T. F., Sopoh, G. E., Johnson, C., Phillips, R. O., Alferink, M., Saunderson, P., Van der Werf, T. S., Dijkstra, P. U. & Stienstra, Y. (2014). Psychometric properties of the participation scale among former buruli ulcer patients in Ghana and Benin.. PLoS Negl Trop Dis, 8 (11), pp.e3254-. https://doi.org/10.1371/journal.pntd.0003254.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/256380
    DOI
    10.1371/journal.pntd.0003254
    Open Access at PMC
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4230837
    Abstract
    BACKGROUND: Buruli ulcer is a stigmatising disease treated with antibiotics and wound care, and sometimes surgical intervention is necessary. Permanent limitations in daily activities are a common long term consequence. It is unknown to what extent patients perceive problems in participation in social activities. The psychometric properties of the Participation Scale used in other disabling diseases, such as leprosy, was assessed for use in former Buruli ulcer patients. METHODS: Former Buruli ulcer patients in Ghana and Benin, their relatives, and healthy community controls were interviewed using the Participation Scale, Buruli Ulcer Functional Limitation Score, and the Explanatory Model Interview Catalogue to measure stigma. The Participation Scale was tested for the following psychometric properties: discrimination, floor and ceiling effects, internal consistency, inter-item correlation, item-total correlation and construct validity. RESULTS: In total 386 participants (143 former Buruli ulcer patients with their relatives (137) and 106 community controls) were included in the study. The Participation Scale displayed good discrimination between former Buruli ulcer patients and healthy community controls. No floor and ceiling effects were found. Internal consistency (Cronbach's alpha) was 0.88. In Ghana, mean inter-item correlation of 0.29 and item-total correlations ranging from 0.10 to 0.69 were found while in Benin, a mean inter-item correlation of 0.28 was reported with item-total correlations ranging from -0.08 to 0.79. With respect to construct validity, 4 out of 6 hypotheses were not rejected, though correlations between various constructs differed between countries. CONCLUSION: The results indicate the Participation Scale has acceptable psychometric properties and can be used for Buruli ulcer patients in Ghana and Benin. Future studies can use this Participation Scale to evaluate the long term restrictions in participation in daily social activities of former BU patients.

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