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dc.contributor.authorMcConachie, H
dc.contributor.authorLivingstone, N
dc.contributor.authorMorris, C
dc.contributor.authorBeresford, B
dc.contributor.authorLe Couteur, A
dc.contributor.authorGringras, P
dc.contributor.authorGarland, D
dc.contributor.authorJones, G
dc.contributor.authorMacdonald, G
dc.contributor.authorWilliams, K
dc.contributor.authorParr, JR
dc.date.accessioned2020-12-21T02:36:15Z
dc.date.available2020-12-21T02:36:15Z
dc.date.issued2018-04-01
dc.identifierpii: 10.1007/s10803-017-3282-2
dc.identifier.citationMcConachie, H., Livingstone, N., Morris, C., Beresford, B., Le Couteur, A., Gringras, P., Garland, D., Jones, G., Macdonald, G., Williams, K. & Parr, J. R. (2018). Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder. JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 48 (4), pp.1041-1051. https://doi.org/10.1007/s10803-017-3282-2.
dc.identifier.issn0162-3257
dc.identifier.urihttp://hdl.handle.net/11343/256993
dc.description.abstractEvaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research.
dc.languageEnglish
dc.publisherSPRINGER/PLENUM PUBLISHERS
dc.rights.urihttps://creativecommons.org/licenses/by/4.0
dc.titleParents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder
dc.typeJournal Article
dc.identifier.doi10.1007/s10803-017-3282-2
melbourne.affiliation.departmentPaediatrics (RCH)
melbourne.source.titleJournal of Autism and Developmental Disorders
melbourne.source.volume48
melbourne.source.issue4
melbourne.source.pages1041-1051
dc.rights.licenseCC BY
melbourne.elementsid1236460
melbourne.contributor.authorWilliams, Katrina
dc.identifier.eissn1573-3432
melbourne.accessrightsOpen Access


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