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    Participatory Research Methods for Investigating Digital Health Literacy in Culturally and Linguistically Diverse Communities

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    Author
    De Souza, RNA; Butt, D; Jethani, S; Marmo, C
    Date
    2021
    Source Title
    Conjunctions. Transdisciplinary Journal of Cultural Participation
    Publisher
    Aarhus University Library
    University of Melbourne Author/s
    Butt, Daniel
    Affiliation
    Victorian College of the Arts
    Metadata
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    Document Type
    Journal Article
    Citations
    De Souza, R. N. A., Butt, D., Jethani, S. & Marmo, C. (2021). Participatory Research Methods for Investigating Digital Health Literacy in Culturally and Linguistically Diverse Communities. Conjunctions. Transdisciplinary Journal of Cultural Participation, 8 (1), https://doi.org/10.7146/tjcp.v8i1.117800.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/258605
    DOI
    10.7146/tjcp.v8i1.117800
    Open Access URL
    https://www.conjunctions-tjcp.com//article/view/117800
    Abstract
    Digital technologies and pre/peri-natal apps are transforming maternity care as women use consumer-oriented communications technologies to obtain information and support. These technologies have introduced a new set of politics into health communication, as information asymmetries embedded into apps and their platforms disrupt traditional concepts of health literacy and consumer participation that have been key concepts in community health advocacy. The development of cultural safety and cultural competence has been one impetus for health professionals to adapt their models of care to address information and support gaps for service users from culturally and linguistically diverse (CALD) backgrounds, by asking clinicians to address the operations of power at work in their cultural norms of practice. However, consumer apps appropriate the cultural interface that has historically been managed by clinicians, raising questions about how participatory these technologies can be for women from marginalised groups. Given the black-boxed nature of many health technologies that by design do not enable adequate description by end users, new modes of research are necessary to both stimulate dialogue on health literacy and health participation as a part of a discovery process around CALD women’s experiences and perceptions.

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