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    Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin.

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    17
    Author
    de Zeeuw, J; Omansen, TF; Douwstra, M; Barogui, YT; Agossadou, C; Sopoh, GE; Phillips, RO; Johnson, C; Abass, KM; Saunderson, P; ...
    Date
    2014-11
    Source Title
    PLoS Neglected Tropical Diseases
    Publisher
    Public Library of Science (PLoS)
    University of Melbourne Author/s
    OMANSEN, TILL
    Affiliation
    Microbiology and Immunology
    Metadata
    Show full item record
    Document Type
    Journal Article
    Citations
    de Zeeuw, J., Omansen, T. F., Douwstra, M., Barogui, Y. T., Agossadou, C., Sopoh, G. E., Phillips, R. O., Johnson, C., Abass, K. M., Saunderson, P., Dijkstra, P. U., van der Werf, T. S. & Stienstra, Y. (2014). Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin.. PLoS Negl Trop Dis, 8 (11), pp.e3303-. https://doi.org/10.1371/journal.pntd.0003303.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/259612
    DOI
    10.1371/journal.pntd.0003303
    Open Access at PMC
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4230927
    Abstract
    BACKGROUND: Buruli ulcer may induce severe disabilities impacting on a person's well-being and quality of life. Information about long-term disabilities and participation restrictions is scanty. The objective of this study was to gain insight into participation restrictions among former Buruli ulcer patients in Ghana and Benin. METHODS: In this cross-sectional study, former Buruli ulcer patients were interviewed using the Participation Scale, the Buruli Ulcer Functional Limitation Score to measure functional limitations, and the Explanatory Model Interview Catalogue to measure perceived stigma. Healthy community controls were also interviewed using the Participation Scale. Trained native interviewers conducted the interviews. Former Buruli ulcer patients were eligible for inclusion if they had been treated between 2005 and 2011, had ended treatment at least 3 months before the interview, and were at least 15 years of age. RESULTS: In total, 143 former Buruli ulcer patients and 106 community controls from Ghana and Benin were included in the study. Participation restrictions were experienced by 67 former patients (median score, 30, IQR; 23;43) while 76 participated in social life without problems (median score 5, IQR; 2;9). Most restrictions encountered related to employment. Linear regression showed being female, perceived stigma, functional limitations, and larger lesions (category II) as predictors of more participation restrictions. CONCLUSION: Persisting participation restrictions were experienced by former BU patients in Ghana and Benin. Most important predictors of participation restrictions were being female, perceived stigma, functional limitations and larger lesions.

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