University Library
  • Login
A gateway to Melbourne's research publications
Minerva Access is the University's Institutional Repository. It aims to collect, preserve, and showcase the intellectual output of staff and students of the University of Melbourne for a global audience.
View Item 
  • Minerva Access
  • Engineering
  • Computing and Information Systems
  • Computing and Information Systems - Research Publications
  • View Item
  • Minerva Access
  • Engineering
  • Computing and Information Systems
  • Computing and Information Systems - Research Publications
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

    Data privacy by design: digital infrastructures for clinical collaborations

    Thumbnail
    Download
    Data privacy by design: digital infrastructures for clinical collaborations (972.6Kb)

    Citations
    Altmetric
    Author
    Sinnott, R. O.; Ajayi, O.; Stell, A. J.
    Date
    2009
    Source Title
    International Conference on Information Security and Privacy (ISP-09)
    Publisher
    International Society for Research in Science and Technology
    University of Melbourne Author/s
    Sinnott, Richard; Stell, Anthony
    Metadata
    Show full item record
    Document Type
    Conference Paper
    Citations
    Sinnott, R. O., Ajayi, O., & Stell, A. J. (2009). Data privacy by design: digital infrastructures for clinical collaborations. In International Conference on Information Security and Privacy (ISP-09), Orlando, Florida, USA.
    Access Status
    Open Access
    URI
    http://hdl.handle.net/11343/28791
    Description

    This is a pre-print of a paper from the International Conference on Information Security and Privacy 2009 published by the International Society for Research in Science and Technology. http://www.promoteresearch.org/2009/isp/index.html

    Abstract
    The clinical sciences have arguably the most stringent security demands on the adoption and roll-out of collaborative e-Infrastructure solutions such as those based upon Grid-based middleware. Experiences from the Medical Research Council (MRC) funded Virtual Organisations for Trials and Epidemiological Studies (VOTES) project and numerous other real world security driven projects at the UK e-Science National e-Science Centre (NeSC – www.nesc.ac.uk) have shown that whilst advanced Grid security and middleware solutions now offer capabilities to address many of the distributed data and security challenges in the clinical domain, the real clinical world as typified by organizations such as the National Health Service (NHS) in the UK are extremely wary of adoption of such technologies: firewalls; ethics; information governance, software validation, and the actual realities of existing infrastructures need to be considered from the outset. Based on these experiences we present a novel data linkage and anonymisation infrastructure that has been developed with close co-operation of the various stakeholders in the clinical domain (including the NHS) that addresses their concerns and satisfies the needs of the academic clinical research community. We demonstrate the implementation of this infrastructure through a representative clinical study on chronic diseases in Scotland.
    Keywords
    grid security; data linkage; anonymisation; virtual organizations

    Export Reference in RIS Format     

    Endnote

    • Click on "Export Reference in RIS Format" and choose "open with... Endnote".

    Refworks

    • Click on "Export Reference in RIS Format". Login to Refworks, go to References => Import References


    Collections
    • Computing and Information Systems - Research Publications [1454]
    Minerva AccessDepositing Your Work (for University of Melbourne Staff and Students)NewsFAQs

    BrowseCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsThis CollectionBy Issue DateAuthorsTitlesSubjects
    My AccountLoginRegister
    StatisticsMost Popular ItemsStatistics by CountryMost Popular Authors