Designing privacy for scalable electronic healthcare linkage
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2009
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International Conference on Computational Science and Engineering
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IEEE Computer Society
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Computing and Information Systems
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Conference Paper
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Stell, A., Sinnott, R., Ajayi, O., & Jiang, J. (2009). Designing privacy for scalable electronic healthcare linkage. In International Conference on Computational Science and Engineering, Vancouver, Canada.
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Open Access
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© 2009 IEEE. Personal use of this material is permitted. However, permission to reprint/republish this material for advertising or promotional purposes or for creating new collective works for resale or redistribution to servers or lists, or to reuse any copyrighted component of this work in other works must be obtained from the IEEE.
Abstract
A unified electronic health record (EHR) has potentially immeasurable benefits to society, and the current healthcare industry drive to create a single EHR reflects this. However, adoption is slow due to two major factors: the disparate nature of data and storage facilities of current healthcare systems and the security ramifications of accessing and using that data and concerns about potential misuse of that data. To attempt to address these issues this paper presents the VANGUARD (Virtual ANonymisation Grid for Unified Access of Remote Data) system which supports adaptive security-oriented linkage of disparate clinical data-sets to support a variety of virtual EHRs avoiding the need for a single schematic standard and natural concerns of data owners and other stakeholders on data access and usage. VANGUARD has been designed explicit with security in mind and supports clear delineation of roles for data linkage and usage.
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Keywords
privacy-preserving computing, system security, privacy engineering