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dc.contributor.authorHausmann, JS
dc.contributor.authorKennedy, K
dc.contributor.authorSimard, JF
dc.contributor.authorLiew, JW
dc.contributor.authorSparks, JA
dc.contributor.authorMoni, T
dc.contributor.authorHarrison, C
dc.contributor.authorLarche, MJ
dc.contributor.authorLevine, M
dc.contributor.authorSattui, SE
dc.contributor.authorSemalulu, T
dc.contributor.authorFoster, G
dc.contributor.authorSurangiwala, S
dc.contributor.authorThabane, L
dc.contributor.authorBeesley, RP
dc.contributor.authorDurrant, KL
dc.contributor.authorMateus, EF
dc.contributor.authorMingolla, S
dc.contributor.authorNudel, M
dc.contributor.authorPalmerlee, CA
dc.contributor.authorRichards, DP
dc.contributor.authorLiew, DFL
dc.contributor.authorHill, CL
dc.contributor.authorBhana, S
dc.contributor.authorCostello, W
dc.contributor.authorGrainger, R
dc.contributor.authorMachado, PM
dc.contributor.authorRobinson, PC
dc.contributor.authorSufka, P
dc.contributor.authorWallace, ZS
dc.contributor.authorYazdany, J
dc.contributor.authorSirotich, E
dc.date.accessioned2021-10-13T01:25:15Z
dc.date.available2021-10-13T01:25:15Z
dc.date.issued2021-10-01
dc.identifierpii: S2665-9913(21)00175-2
dc.identifier.citationHausmann, J. S., Kennedy, K., Simard, J. F., Liew, J. W., Sparks, J. A., Moni, T., Harrison, C., Larche, M. J., Levine, M., Sattui, S. E., Semalulu, T., Foster, G., Surangiwala, S., Thabane, L., Beesley, R. P., Durrant, K. L., Mateus, E. F., Mingolla, S., Nudel, M. ,... Sirotich, E. (2021). Immediate effect of the COVID-19 pandemic on patient health, health-care use, and behaviours: results from an international survey of people with rheumatic diseases. LANCET RHEUMATOLOGY, 3 (10), pp.E707-E714. https://doi.org/10.1016/S2665-9913(21)00175-2.
dc.identifier.issn2665-9913
dc.identifier.urihttp://hdl.handle.net/11343/288076
dc.description.abstractBackground: The impact and consequences of the COVID-19 pandemic on people with rheumatic disease are unclear. We developed the COVID-19 Global Rheumatology Alliance Patient Experience Survey to assess the effects of the COVID-19 pandemic on people with rheumatic disease worldwide. Methods: Survey questions were developed by key stakeholder groups and disseminated worldwide through social media, websites, and patient support organisations. Questions included demographics, rheumatic disease diagnosis, COVID-19 diagnosis, adoption of protective behaviours to mitigate COVID-19 exposure, medication access and changes, health-care access and communication with rheumatologists, and changes in employment or schooling. Adults age 18 years and older with inflammatory or autoimmune rheumatic diseases were eligible for inclusion. We included participants with and without a COVID-19 diagnosis. We excluded participants reporting only non-inflammatory rheumatic diseases such as fibromyalgia or osteoarthritis. Findings: 12 117 responses to the survey were received between April 3 and May 8, 2020, and of these, 10 407 respondents had included appropriate age data. We included complete responses from 9300 adults with rheumatic disease (mean age 46·1 years; 8375 [90·1%] women, 893 [9·6%] men, and 32 [0·3%] participants who identified as non-binary). 6273 (67·5%) of respondents identified as White, 1565 (16·8%) as Latin American, 198 (2·1%) as Black, 190 (2·0%) as Asian, and 42 (0·5%) as Native American or Aboriginal or First Nation. The most common rheumatic disease diagnoses included rheumatoid arthritis (3636 [39·1%] of 9300), systemic lupus erythematosus (2882 [31·0%]), and Sjögren's syndrome (1290 [13·9%]). Most respondents (6921 [82·0%] of 8441) continued their antirheumatic medications as prescribed. Almost all (9266 [99·7%] of 9297) respondents adopted protective behaviours to limit SARS-CoV-2 exposure. A change in employment status occurred in 2524 (27·1%) of 9300) of respondents, with a 13·6% decrease in the number in full-time employment (from 4066 to 3514). Interpretation: People with rheumatic disease maintained therapy and followed public health advice to mitigate the risks of COVID-19. Substantial employment status changes occurred, with potential implications for health-care access, medication affordability, mental health, and rheumatic disease activity. Funding: American College of Rheumatology.
dc.languageEnglish
dc.publisherELSEVIER
dc.titleImmediate effect of the COVID-19 pandemic on patient health, health-care use, and behaviours: results from an international survey of people with rheumatic diseases
dc.typeJournal Article
dc.identifier.doi10.1016/S2665-9913(21)00175-2
melbourne.affiliation.departmentMedicine Dentistry & Health Sciences
melbourne.affiliation.facultyMedicine, Dentistry & Health Sciences
melbourne.source.titleThe Lancet Rheumatology
melbourne.source.volume3
melbourne.source.issue10
melbourne.source.pagesE707-E714
melbourne.elementsid1567381
melbourne.openaccess.urlhttps://europepmc.org/articles/PMC8298011?pdf=render
melbourne.openaccess.pmchttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298011
melbourne.openaccess.statusPublished version
melbourne.contributor.authorLiew, David
dc.identifier.eissn2665-9913
melbourne.accessrightsAccess this item via the Open Access location


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