Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome
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2019-05-02
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Conference on Human Factors in Computing Systems - Proceedings
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Association for Computing Machinery (ACM)
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Computing and Information Systems
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Conference Paper
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Davies, T., Jones, S. L. & Kelly, R. (2019). Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome. Proceedings of the ACM CHI Conference on Human Factors in Computing Systems (CHI 2019), Association for Computing Machinery (ACM). https://doi.org/10.1145/3290605.3300452.
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Abstract
Chronic Fatigue Syndrome (CFS) is a debilitating medical condition that is characterized by a range of physical, cognitive and social impairments. This paper investigates CFS patients’ perspectives on the potential for technological support for self-management of their symptoms. We report findings from three studies in which people living with CFS 1) prioritized symptoms that they would like technologies to address, 2) articulated their current approaches to self-management along side challenges they face, and 3) reflected on their experiences with three commercial smartphone apps related to symptom management. We contribute an understanding of the specific needs of the ME/CFS population and the ways in which they currently engage in self-management using technology. The paper ends by describing five high-level design recommendations for ME/CFS self-management technologies.
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