TY - JOUR AU - Nichols, VP AU - Ellard, DR AU - Griffiths, FE AU - Kamal, A AU - Underwood, M AU - Taylor, SJC Y2 - 2020/12/17 Y1 - 2017/12/01 SN - 2044-6055 UR - http://hdl.handle.net/11343/255006 AB - OBJECTIVE: To systematically review the qualitative literature of the lived experience of people with a chronic headache disorder. BACKGROUND: Chronic headaches affect 3%-4% of the population. The most common chronic headache disorders are chronic migraine, chronic tension-type headache and medication overuse headache. We present a systematic review and meta-ethnographic synthesis of the lived experience of people with chronic headache. METHODS: We searched seven electronic databases, hand-searched nine journals and used a modified Critical Appraisal Skills Programme checklist to appraise study quality. Following thematic analysis we synthesised the data using a meta-ethnographic approach. RESULTS: We identified 3586 unique citations; full texts were examined for 86 studies and 4 were included in the review. Included studies differed in their foci: exploring, patient-centred outcomes, chronic headache as a socially invisible disease, psychological processes mediating impaired quality of life, and the process of medication overuse. Initial thematic analysis and subsequent synthesis gave three overarching themes: 'headache as a driver of behaviour' (directly and indirectly), 'the spectre of headache' and 'strained relationships'. CONCLUSION: This meta-synthesis of published qualitative evidence demonstrates that chronic headaches have a profound effect on people's lives, showing similarities with other pain conditions. There were insufficient data to explore the similarities and differences between different chronic headache disorders. LA - English PB - BMJ PUBLISHING GROUP T1 - The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature DO - 10.1136/bmjopen-2017-019929 IS - BMJ Open VL - 7 IS - 12 L1 - /bitstream/handle/11343/255006/PMC5778309.pdf?sequence=1&isAllowed=y ER -